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Keynote Presentations

ADEC is pleased to announce the following keynote presentations for the 2020 Conference.

Thursday, April 30
Elevating Childhood Bereavement as a Public Health Priority: A Call to Action
Brooke Griese, PhD

Currently, most systems of care do not adequately resource preventive interventions that reduce risk and promote resilient adaptation in youth impacted by bereavement. Dr. Griese will explore ways the field can raise awareness and catalyze increased access to effective supports for grieving children and families–sharing an example of a research-based wellness approach successfully implemented in the community. In addition to reviewing the latest Childhood Bereavement Estimation Model prevalence data, she will examine how societal factors such as increased suicide and overdose deaths are complicating the bereavement landscape, and how a rise in focused advocacy efforts can generate transformative change.

Learning Objectives:
-- Review prevalence rates derived from the Childhood Bereavement Estimation Model (CBEM), analyzing the data to better understand state and regional differences in youth bereavement within social contexts.
-- Explore one research-based approach to comprehensively addressing childhood bereavement with a continuum of preventive services targeting the whole child, family, and community.
-- Examine current societal factors impacting youth bereavement and identify personal action items to help support those who are grieving and contribute to the advancement of the field.


Brook Griese, Ph.D., is a licensed clinical psychologist and co-founder of Judi’s House and JAG Institute (JH/JAG). Since 2002, this Denver nonprofit has provided care for more than 10,000 children and caregivers, trained over a dozen interns and postgraduates annually, and reached many thousands more with outreach and education. Through the integration of research and practice in a community setting, JH/JAG has emerged as a national thought leader by developing the Comprehensive Grief Care model, a continuum spanning from public education and advocacy to group and individual interventions. Dr. Griese spearheaded the trauma-informed programs and large-scale research initiative at JH/JAG and served as chief executive before transitioning to the board of directors. She is co-author of Pathfinders, a 10-week group curriculum, and regularly publishes and presents nationally on bereavement, trauma, and resilience promotion. Dr. Griese has served on the ASU Family Bereavement Program Advisory Board, Mayor’s Denver Education Compact, and Governor’s Colorado Behavioral Health Task Force Children’s Subcommittee, and was recently honored with the National Alliance for Grieving Children’s Excellence in Service Award. She earned her Ph.D. from the University of Colorado Boulder and is an assistant clinical professor in the Department of Family Medicine at the University of Colorado.

 

Friday, May 1
Taking Research into Practice
Jan Aldridge

Historically much learning in palliative care has been experience driven. More recently the value of learning from practice has been joined by a growing evidence base from research.  This presentation will draw on both traditions and collaborative research in three main areas and how it has informed practice. 

First, we shall explore the interface between research and practice in communication with children and parents and the facilitation of communication in difficult circumstances.

Second, it is important to examine the rewards and challenges of the palliative care staff.  Our hospice-based study identified both individual factors and factors related to the wider organisational structures and practices as influencing functioning.

Third, the experiences and needs of the family of the child with palliative care needs will be the focus.

Finally, rich personal lessons learned from working with palliative care needs will be shared. 

Learning Objectives:
-- Appreciate the essential importance of collaboration between practitioners, researchers and families in palliative care research
-- Consider the importance of empowerment in working with children and families
-- Explore the impact of the work on ourselves.

Dr Jan Aldridge is a Consultant Clinical Psychologist at Leeds Teaching Hospitals and at Martin House Children`s Hospice, and a founding member of the Martin House Research Centre at the University of York. Dr Aldridge`s clinical and research work particularly addresses the psychological challenges facing children and young people with serious and life-shortening conditions, their families and the staff who support them. Her experience includes lecturing, research and professional training in the UK and internationally, including the US, Singapore, China, Norway, Chile and Denmark. She has recently delivered Masterclasses in England, Scotland and Ireland for the national body of children`s palliative care in the UK, Together for Short Lives. She has published widely in academia and writes for professional and lay audiences.

 

Saturday, May 2
The Helper's Journey: Empathy, Compassion and the Challenge of Caring
Dale G. Larson, PhD

How can we fulfill our initial purpose and goals in caring for people facing grief, loss, trauma, and life-threatening illness?  Are there resilience-enhancing strategies that can prevent burnout, moral distress, and compassion fatigue, enhance our clinical efficacy, and allow us to wrest personal and professional growth from the work? 

In this presentation we will explore recent research and theory offering new perspectives on these phenomena, ranging from the neuroscience of telomeres to the study of eudaimonic well-being.  We will explore what person-centered care asks of us, apply a transactional model of stress and coping, and identify specific proven strategies for strengthening resilience.  

Learning Objectives:
-- List the key features and causes of burnout, compassion fatigue and moral distress and self-assess on these dimensions
-- Identify strategies for strengthening resilience and stress-related personal and professional growth
-- Identify techniques for maintaining emotional balance and empathic attunement in counseling for grief, trauma, and life-limiting illness
  

Dale G. Larson (B.A, University of Chicago; Ph.D, U.C. Berkeley) is Professor of Counseling Psychology and Director of the Graduate Health Psychology studies at Santa Clara University. A clinician and researcher, he is a Fulbright Scholar, a Fellow in the American Psychological Association, and member of the International Work Group on Death, Dying and Bereavement. Dr. Larson was Senior Editor and a contributing author for Finding Our Way: Living with Dying in America, the national newspaper series that reached 7 million Americans. His publications on end-of-life issues, stress in professional caregivers, grief and grief counseling, and self-concealment are widely cited, both in the scientific literature and in the popular media.  He is the author of the award-winning book, The Helper's Journey, and is a popular national and international presenter. He has recently given keynote presentations for the National Hospice and Palliative Care Organization, the Minnesota Network of Hospice and Palliative Care, and the American Academy of Hospice and Palliative Medicine, and has conducted webinars for the Hospice Foundation of America, NHPCO, and ADEC.  He was the 2017 International Educator for the Australian Centre for Grief and Bereavement and received ADEC’s Death Educator Award in 2016.